To find a cure for inflammatory and related myopathies, while serving those affected by these diseases.

he Myositis Association of America (MAA) was created by Betty Curry in March, 1993, as the Inclusion Body Myositis Association (IBMA), a non-profit corporation. The National Organization of Rare Disorders (NORD) provided the names of 16 patients who became the initial members, now the list of 16 patients has grown to 6,000. Since then, scientists, practicing physicians and other medical professionals have supported the organization through the Medical Advisory Board. This group provides medical information to staff and patients and guides the TMA research program. The first conference was held in 1995 and is now an annual event with a panel of medical experts, peer counseling, sessions on coping skills, support group training, and time to meet other patients and their families. TMA’s research program, also begun in 2002, has now funded $2.7 million in myositis research.

Research
Conferences
Support group training
Peer counseling