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NIEMANN-PICK DISEASE GROUP UK
United Kingdom
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Health/Medical
We are committed to relieving sickness and distress amongst such families and, to providing emotional, as well as practical support. Through the development of a strong family support network, we are helping to reduce feelings of isolation and despair.
More information
The Niemann-Pick Disease Group (UK) is a charitable organisation. It offers support and information to families affected by any type of Niemann-Pick disease and to associated professionals. The organisation was formed in 1991, as the 'Niemann-Pick Support Group', by parents, Susan and Jim Green, following the diagnosis of Niemann-Pick Disease Type C in two of their three children. To make a positive difference to the lives of those affected by Niemann-Pick disease (NPD) and their families, through the provision of care and support, accurate information and the promotion of relevant research.
Our offer
Care
Information
Research
Information
Research
Website link: www.niemannpick.org.uk